Monday, December 31, 2007
Pop-Pop is leaving tonight. Abby is going to miss him a bunch.
Sunday, December 30, 2007
Nana went back home. Abby said she will try and get better so Nana can see her when she is better.
Friday, December 28, 2007
We had our meeting with Dr. King tonight. I have a lot of mixed emotions about it. He stated all the reasons why she won't survive. Of course, we all believe she will eventually come home. Maybe tomorrow I'll give more details - tough night for everyone.
Thursday, December 27, 2007
Tomorrow we have a meeting with her cardiologist. We are a little apprehensive to hear what he will say. He will go over the plan of action.
Wednesday, December 26, 2007
Yesterday, they gave her a break from the paralysing medicine. They like to do that every once and a while to see how long it takes to "come around." She was opening her eyes today and moving her little hands a little bit- which was awesome. We can't wait to hold her. (They gave her more medicine so she would continue to "sleep.")
I think things are still going good. They might close her up Friday. So we will see.
Tuesday, December 25, 2007
I added a bunch of Christmas pictures to the slide show. We gave her the Supergirl outfit. The nurse even did her hair this morning.
Monday, December 24, 2007
We seem to have entered a new phase. Last week, things were happening almost daily. Now, we are in a slower time. She just has to get fluids off and continue to recover from everything that she has been through. We all have to have patience.
Merry Christmas to everyone. The hospital had carolers come through the PICU. This certainly is a different Christmas for all of us.
Sunday, December 23, 2007
We had some very nice visitors come and stop by to see her.
Saturday, December 22, 2007
He said that if it was any other baby, there would be almost no chance of survival, but because of the fact the she has made it this far, she might have actually have a chance.
So, they weened her down off the machine, the surgeons came in and the operation began. Talk about tension. The five of us didn't breath for about 2 hours. The surgeon meet us in the waiting and said everything went fine. She was stable and the bleeding was down to a trickle. Jenn asked him if it was OK to give him a hug, he said yes, and all 5 of us gave him a giant group hug. We think he was kind of surprised. She will recover for a few days and get the extra fluids off of her. On Tuesday or Wednesday they will close her chest. There is still a high risk for infection. They don't like to have the chest open for more than 7 days.
The entire staff at that hospital is unbelievable. They really earned their money this week. We are not out of the woods yet, but this was a major milestone.
To all the many people who have prayed for our baby: THANK YOU!!!! We know she has touched many people. So many people have been so generous. Many people we don't even know. I can't even express the emotions we have all been through. Please continue to pray for our sweet little Abby.
Friday, December 21, 2007
They were doing 3 things to get rid of the fluids. She is still peeing, the ECMO is now taking off fluids (which is something they started last night), and peritoneal dialysis.
The doctor stated that she is the strongest baby he has seen in his 10 years of medicine.
Jenn's coworkers came to visit us today. They had a fundraising breakfast this morning. They brought us an enormous early Christmas present!! We are so grateful. We decided that when she comes home, everyone will come over for a party. Then everyone can take turns holding our little Supergirl.
Hopefully, the plan is sometime they will take her off ECMO sometime this weekend. Here is a link from the hospital's website about ECMO treatment:
Thursday, December 20, 2007
They went in to clean out her chest, and ended up trying to see if they could get her off ECMO. They kind of did a trial run. They had her "off" the ECMO for over 2 hours. She was still physically connected to the machine, but she was doing all the work. (Once they surgically remove the cannulas from her heart, it's basically a "one shot deal" - there really wouldn't be enough time to get a new machine hooked up.) They decided that she was close, but that her lungs weren't quite ready. We saw her x-rays from 3:00pm today and they looked the best they have been. The plan is to let her recover tonight, then see what her lungs look like tomorrow, and then maybe try and take her off the ECMO. Abby is now on a oscillating ventilator, the vibrating one wasn't quite working for her. This seems to be helping her lungs quite a bit.
She literally has 10-15 doctors, nurses, surgeons, and respiratory techs constantly thinking about her. They do the rounds at 9:30-10:00 every morning and one doctor has to combine and balance all the opinions and ideas. He, Dr. Mark Buchholz, is responsible for writing the orders this week. She has well over 100 years of experience helping her. As one doctor has said, theories are great, but it always comes down to how she reacts to these different things, i.e. different medicines, ventilators, procedures, etc.
Tomorrow is another day, you never know what is going to happen. But we hope and pray she continues to improve. Her lungs are the thing we are concentrating on. If they can heal another day or two, she can come off the ECMO. The heart surgeon has been very pleased with the way her heart has performed.
Wednesday, December 19, 2007
They might take her off ECMO tomorrow, or maybe Friday. That would be huge. It could be rocky though. So hopefully everything will be good.
There is so much information to absorb. We have to be prepared for anything. Abigail is so strong, we have to be strong for her. I can't believe this whole thing.
Tuesday, December 18, 2007
They had to switch the ECMO circuit. That in itself went fine. About an hour afterwards, there was an emergency where the pump was stopping. She had to basically be "on her own" for a little bit. They had to bag her, which means manually blow air into her lungs. Her heart never stopped. She recovered and they said that, for some reason, the pump was sensing pressure against it. It was pumping blood into her heart and was getting pressure against it, so it turns off to prevent "an explosion." The good news was that when they were bagging her, her stats went up, which means that air was in her lungs. So, her lungs are inflated now, at least a little bit.
Then she had another surgery to clean out her chest. That in itself went well. They took one of her retractors out. Afterwards, her blood pressure dropped and the pump got clogged. This was another emergency. They had to clamp the pump off, and again she was on her own. She didn't do as well as before. They had to give her adrenaline. She does have an infection in the middle of her chest. They think that when they cleaned her out, they disturbed the bacteria (which grows on the plastic tubes in her chest) and showered her body with toxins. They also think that she might not be liking one of her 4 antibiotics too well. Again, she stabilized. They said she might just be getting used to the new ECMO circuit.
There are about 10 million variables that they have to think about and find the right balance for. She is so small, there is not a lot of room for error. This is an indescribable experience, it is a nightmare. I pray that she makes it through the night.
Monday, December 17, 2007
She is peeing, which is awesome. They are very excited about her pee production. It means her kidneys are still working and she is able to pee out excess fluids.
We asked the doctor about her chances for survival. He said it was 50-50. I never thought I would be happy for my baby when her chances for survival goes up to 50%. That is what we are dealing with. We know she is a fighter, she has been fighting since the day she was born. I can't wait until she gets off the ECMO. That will be a major milestone.
Many thanks to everyone who has stopped by, sent cards, and left notes. We really are so overwhelmed by every one's generosity. We don't know how we can ever pay people back.
Sunday, December 16, 2007
I am hopeful. I am thankful for every day.
There are so many things that can go wrong. She gets a ultrasound of her head every day. If there is blood in her brain, it is fatal because they would have to turn off the ECMO. They will have to switch out the ECMO machine sometime this week. This is a big deal because there will be about 45 seconds when she will have to "hold her breath" while they "plug in" the new machine. They have to switch the machine because there are clots in the lines. There is an arterial line in her right arm that is causing concern because it is affecting the circulation in her right hand. There is always a high risk for infection.
Saturday, December 15, 2007
We really appreciate everyone who is praying. Please continue to do so.
I will not be able to update the blog everyday as I have done in the past.
Thursday, December 13, 2007
Wednesday, December 12, 2007
Tuesday, December 11, 2007
Tomorrow we will have a special performance by a harpist for Abby. They are really big on musical therapy and it will be a great way to relax before the big day. Until tomorrow's update - have a great day!
Monday, December 10, 2007
I'd like to get off this ride now, please...
Sunday, December 9, 2007
Saturday, December 8, 2007
Abigail weighed 2490. She is sedated. When she gets agitated, her oxygen goes down and takes a long time to come back. Her oxygen needs go up and down, sometime its up to 50, 60, 70%, other times it's down to 20-30%.
We brought her the stocking that Nana made her. We also brought in a CD player with some kiddie music CDs. Dad and Heather put together her toy box and shelfing thing.
Friday, December 7, 2007
Thursday, December 6, 2007
Wednesday, December 5, 2007
It seems that she is ready for the surgery. You can tell she really needs it. She is retaining more fluids. Her lungs have lots of secretions and she is more agitated.
I feel terrified. I mean, my baby girl is having open heart surgery. What more can you say? It's amazing to think that if she would have been born even just 25-30 years ago, she probably wouldn't have made it this far. And I know that if she doesn't have the surgery, she won't make it too much further either. But we can't get worked up about things we can't control. We will remain positive. She has done so well up to this point, there is no reason to think that things won't turn out just fine. This time next year, we will be taking her to the mall to get her picture taken with Santa.
Tuesday, December 4, 2007
The nurse tonight made a collage with pictures she had taken. She also gave us a book to read about heart surgery.
Last night, Abby excabated herself again. Hopefully, that will be the last time she does that. She got a bigger tube put in, so that should help.
Monday, December 3, 2007
Jenn had a co worker meet us at the hospital. Iris brought us a really super home made chicken dinner with mac and cheese, green beans, and brownies for dessert. Iris also brought some people from her prayer group who said a nice prayer with us.
Sunday, December 2, 2007
We had a really nice afternoon with Abby today. We got her a Abby Cadabby doll to put in her little bed. For those of you that don't know, Abby Cadabby is the newest character on Sesame Street and she is a three year old fairy that uses her magic for good.
Abby is starting to open her eyes for longer periods of time and looking around and focusing - especially on us, which is pretty awesome.
We also bought our first christmas tree yesterday - we will include a picture of it in the blog as soon as we get it set-up.
Saturday, December 1, 2007
But she is doing good. We read her Dr. Seuss books. She seems to like them . She really looks comfortable when we can hold her.
Friday, November 30, 2007
I also used my incredible powers of "relaxation" as I held her tonight so she could poop. She also is on room air.
Last night Abby was having a lot of secretions in her chest. The new ventilator hook up got loose as she was wiggling around and she basically extabated herself. Which means her ventilator tube came out. The nurses were quickly able to intabate her and nothing bad really happened. So she is back to the old way they had the ventilator hooked up.
We will soon have the exact day of the surgery, which will be in about 2 weeks.
Thursday, November 29, 2007
Wednesday, November 28, 2007
Also last night, Abby had the biggest most continuous poop ever. Three diapers full!!! Oh, and the smell was god awful. Its all the medicine and extra stuff they put in the breast milk. It was pretty awesome!
I had a person from my insurance company call me today. Everything is fine with the insurance stuff, so don't worry about that. She told me that the cost Abigail's care had reached over $214,000!!!! That's for 35 days in the NICU. Pretty unbelievable.
Tuesday, November 27, 2007
Abby had a very good day today. We did Kangaroo Care (skin to skin) for 2 hours and we both fell asleep. She had an extra dose of laciks (sp?)yesterday since she was retaining quite a bit of fluid - with the ventilator even though it helps her breath and takes stress off her heart -it creates quite a bit of mucus and secretion which needs to be manually cleaned. The laciks helped her get rid of a lot of the fluid in her lungs which is a very good thing. She did weigh in at 2190 but Dr. Baxter wants to see how things play out at the end of the week with the blood transfusion and the extra dose of medicine before we call an accurate weight. Tomorrow she has her first eye exam. Hope everyone is well.
Monday, November 26, 2007
We got the special medal from the Latchfords' and said the prayer. We appreciate all the help.
Sunday, November 25, 2007
Even though this has been the hardest experience - I can't say enough how blessed Greg and I feel for everyones' support, thought and love. Please continue the positive vibes. Love you all, Jenn.
Saturday, November 24, 2007
Friday, November 23, 2007
We spoke with Dr. Nuemann. She stated that Dr. King is shooting for having the entire corrective operation in 3 weeks, around the middle of December. Abby could have the operation sooner if something unexpected comes up. She will probably have another blood transfusion soon. She doesn't have any infections, which is important. She still weighed 1910. Her pH levels were a little different than before, nothing major though. Dr. Nuemann said that if everything goes well, then January is not out of the question as a time for Abigail to come home.
Thursday, November 22, 2007
Wednesday, November 21, 2007
Tuesday, November 20, 2007
Jenn said that she had some spells during the day and previous night. The nurses said that she hadn't pooped in a while, so they gave her a suppository. She had a huge blowout, and that seemed to help her breathing. They think that her straining was affecting her oxygen levels. They said they will give her another suppository tonight.
We got the first bill from the doctors. It was only about $14,000. The doctors that treat Abigail are not hospital employees, but work for a physicians group. We haven't gotten the hospital or the cardiologist bill yet.
Monday, November 19, 2007
We put together the crib last night, which looks awesome. As well as our new bench for our entrance way, a new coffee and end table, and our new recliner. Lots of boxes.
We are looking forward to the shortened work week.
Saturday, November 17, 2007
Friday, November 16, 2007
Dr. King is going to do an another echo cardiogram sometime this weekend.
Grandma goes back home tomorrow, so Abby will miss her very much.
Thursday, November 15, 2007
Wednesday, November 14, 2007
Tuesday, November 13, 2007
Monday, November 12, 2007
Jenn said that Abby is doing well. She sucked her thumb for a little bit today. They are going to give her a blood transfusion in order to increase her red blood cell count. She continues to gain weight, up to 1650 grams last night.
Jenn said that Abigail's facial features are developing and she is looking more and more like a baby. She definitely has Jenn's nose.
Sunday, November 11, 2007
Abigail weighed 1610 grams last night, so that is good. Things are progressing nicely. Not much is going on right now with her health. She just needs to continue to gain weight and get big!!!
Saturday, November 10, 2007
We had the chaplain come by last night and give Abby a blessing, so that was nice.
Nana is going back home today and Grandma is flying in. Nana has done a terrific job helping out this week. She has cooked us a ton of food and painted Abigail's room- which looks great by the way!
Friday, November 9, 2007
Dr. King will speak with us today. He has a conference with the surgeons every Thursday where they discuss all their cases.
She is still on the ventilator, but the nurse said they didn't expect her to be on that for a long time, so we will see.
Wednesday, November 7, 2007
They are going to check for infections, check her blood gas levels, and took another chest xray. That's all we know right now.
Life in the NICU is often one of intense and conflicting emotions. The combination of stress, fear of the unknown, worry for your baby, and many other considerations can be overwhelming at times. Parents often liken it to an emotional roller coaster ride, with some days being exhilarating and others despairing.
The progress of your baby plays the central part. Some days, your baby will be growing and progressing and just when you think everything is finally all right, she may have a setback. Conversely, some babies may suddenly turn around for the better when the expectation was poor. These types of events frequently trigger emotional highs and lows that change from day to day.
Even with the prospect of a happy and healthy outcome, parents often feel a sense of loss during the first days in the NICU. Though the baby might be doing fine, her mother and father must come to terms with the fact that however they imagined the birth and the arrival of a new baby, something else entirely has happened. Family and friends often don’t know how to react either, which reinforces parents’ sense of loss. For example, it may be many weeks before someone says “congratulations” even though you’ve just had a baby.
Many parents, especially mothers, feel a sense of guilt; they imagine that they have done something to create this situation. The reality is parents have little control over the events that lead them to the NICU. In general, guilt is not a particularly useful emotion and often becomes a barrier to positive behaviours and thoughts. Do whatever you need to do to shed the guilt. If there is some connection between a parents behaviour and the outcome of their baby, dwelling on it will not change what has happened nor help the baby recover.
Sometimes, parents are reluctant to bond with their baby in the NICU; they fear getting close to their child who may not live. With the intense emotions and dashed expectations, the thought of bonding emotionally to their child with the possibility that the bond will be taken away can be fearful for parents, especially at first. Parents usually get over this fear, perhaps with encouragement, but then have to get over the guilt of not immediately investing emotionally in their child.
Fathers often feel guilty about their feelings of weakness and fear because, as culture dictates, they are supposed to be strong and be a pillar of strength for the rest of the family. In the NICU, with a sick baby, a wife who has just gone through labour and may be ill herself, family responsibilities to uphold, and financial pressures, many men have difficulties in fulfilling all these roles on behalf of everyone all the time. Experiencing this may cause guilt.
While parents and babies settle into life in the NICU, life goes on in the outside world and a balancing game begins: how much time can we afford to spend with our child? While parents are encouraged to spend as much time as they can with their baby, this should not be done by neglecting the rest of the family or their own peace of mind. Even though you naturally want to stay in the NICU as much as possible, you should get out at least occasionally going for a walk, getting some air, and clearing your head. Finding a balance between commitments in and outside the NICU can be difficult. Parents should speak with the staff and seek help when they need it.
These types of issues can be compounded when the NICU is far from the family home, perhaps even in another city. Parents find themselves torn, with one parent always at the NICU and the other running around trying to maintain an income and keep the rest of the family going, all the time worrying about what is going on with their child and their spouse.
In the NICU, the over-riding concern for parents is their baby’s condition. As they become more familiar with the routines and setting of the NICU, parents often feel a desire to “do something” to help.
While much of what goes on in the NICU is out of their hands, parents can focus on several things. They can learn about their child’s condition and the treatments and procedures that apply to the best of their ability. Health care professionals can help in this regard as well. Becoming informed is a positive development which can increase the communication between a parent and the team in the NICU. Having a better idea of what is going on can improve your peace of mind and reduce the sense of helplessness that parents often feel in the NICU.
At the same time, focussing entirely on the details and the numbers does not necessarily contribute to an improved understanding of what is going on. Some parents begin to pay attention to the incredible amount of detailed information that the various machines are giving and may become fixated with the numbers. Interpreting numbers is not as simple as it may seem. Indicators can fluctuate naturally from day to day or even minute to minute. Most of these fluctuations are not an indication that something has suddenly and dramatically improved or become worse. Parents should focus as much as possible on the longer view and soak up the positive aspects of what is going on as much as possible.
Additionally, parents should do what they can to make their baby as comfortable and welcome as possible. This can mean many things; parents can whisper to or gently touch their baby. At some point “kangaroo care,” which is a skin-to-skin holding of the baby, will be possible, as will breastfeeding.
Beyond the baby, parents should also make efforts to remain connected with other members of the family.
Tuesday, November 6, 2007
She gained more weight. She is up to 1520 grams. The nurse this morning said that the goal is to get her to 2500 grams, which is about 5.5 lbs. Then she can have her operation.
They didn't try to take her off the cpap today, they said maybe tomorrow.
Monday, November 5, 2007
Today Jenn said that Abby pulled out her feeding tube! She is so strong! The nurses said that she was trying to share with her stuffed animals. That got her a bath and all new bedding.
She has a little crack on her butt (no pun intended) that was bleeding a little bit. So they are going to continue to air dry her bottom.
Tomorrow they are going to take her off the cpap. It's kind of a test, they want to see how well she does. She is pulling at the tubes, so they don't want her expending energy grabbing at the thing. But, on the other side, she has to be able to maintain her oxygen levels. So we will see what happens.
Sunday, November 4, 2007
She has a little diaper rash on her butt, but that is clearing up. The doctor decided to not prick her to take any blood today to give her a rest. Tomorrow they will do a bunch of blood work. She is pooping a lot, so that is always good. Her weight is on an upward trend too.
Friday, November 2, 2007
She has to go back under the lights for a little bit.
I have to go back to work on Monday so we will see how that goes.
Abby is very excited that her Nana is coming out to visit tomorrow.
Thursday, November 1, 2007
First some good news: she is off the "tanning" lights and they don't think she has any infections.
The following may seem confusing, because none of us are cardiologists.
When babies are born, the blood pressure in the lungs is very high, due to the fact that, in utero, we get oxygen from the Mom. After birth, the blood pressure slowly lowers in all babies. This is happening to Abigail. Except in her case, this "normal" occurrence is having negative consequences due to her unique anatomy.
Due to 1 part of her heart defects, (double outlet of the right ventricle) too much blood is going to her lungs. This causes her lungs to fill with fluids and prevents breathing. Most likely, Abby will need to get a band put around her pulmonary artery. That is the artery that sends blood to the lungs. The band would constrict the flow to her lungs. The doctor said there is a good chance her breathing will continue to deteriorate, and eventually she would need a ventilator. At that point, she would have the band put on the artery. From a cardiac surgeon's perspective, putting a band on is a piece of cake.
All of this is a big question mark at this point. If she continues to do OK and to gain weight on the C-pap, then the band won't be needed. She may need to increase the C-pap and have supplemental oxygen. We just have to wait and see. We really don't know when any of this will happen.
Wednesday, October 31, 2007
They had to put Abby back on the C-PAP (at least for 2 days). Apparently, her breathing took a little dip this afternoon. She was getting the "apnea" a little bit more.
They also took a blood culture to check Abby's white blood cell count. They want to check for any bacterial infections. They started her on antibiotics, just in case.
Hopefully, this will be no big deal. They tend to overdo treatments at first, then pull back from things that she doesn't need.
Today is Abby's one week birthday. We gave her little pink Air Jordan socks.
The chest x rays looked almost the same as the ones they took before, so that is good. The doctor said she is thinking they can take out the picc thing in her leg. That would be good too. They don't think she will need that medicine to keep that PDA open.
Just out of curiosity, we asked the doctor how much a day in the NICU costs. Just for the bed time (which is 24/7 emergency nursing care) its a "couple of grand." I've heard it's more like $3000. But, if you break that down, it's only $125.00 per hour. That actually doesn't seem too bad, considering the amount of care she actually receives. Plus, add on top of all that the cardiology stuff that Abby gets. I'm glad I have insurance. And yes, all the doctors have been confirmed to be covered by my insurance.
Tuesday, October 30, 2007
Last night was rough. It really is a roller coaster. I notice there is a constant feeling of fatigue, stress, anxiety, etc. in the background. It's like an undercurrent. You can build a wall to keep it out, but it just builds up, then it just hits you. Holding Abby and remembering that she will come home one day helps a lot.
I realized this is the first week I haven't been on the road in over 6 weeks. I don't really ever want to go back on road. I will have to travel a little bit. So that will be hard.
Jenn has been a pumping machine!! So that is going very well. She has been great through out all this.
Abigail is so beautiful. We love her very much.
PS - Abby passed her first hearing test.
Monday, October 29, 2007
Our friend from college, Dawn and her family, came to visit yesterday. They have a 2 1/2 year old daughter named Gabby. So that will be cool!
Abby weighs 3 pounds now.
Sunday, October 28, 2007
This pictures shows Abby sleeping with her little bow in her hair and her sunglasses. The nurse during the day put that on her. It's not really that dark around her, it's just that her "tanning" light is so bright around her. That brown and pink blanket is the hospital's.
There are over 100 nurses on staff in the NICU, so every time so far, the nurse has been different. Which is cool because they all have their own styles, experiences, and personalities. They all tell you a little different bit of information. Tonight the nurse, Janna, told us she used to work in pediatrics and saw lots of kids with heart problems. She was amazed with how strong Abby was. She said for all the problems her heart has, that her little body has compensated these for these defects and is doing fine. Hopefully, she'll be off the lights tomorrow. The nurse had also taken a tour of Lancaster county and loved the Amish! She said she would be on for the next few nights, so we will see her again.
I think I heard that the nurses can pick what pair of kids they get. It's always 1 nurse for 2 kids. They pair up one kid that is easy, with one that has more "needs." Abby is the "easy" one in her pair.
Abby "drinks" 180ml a day of milk. Jenn made over 360ml today. (Hey, remember, she's a Lancaster county girl!)
As soon as I walked in, the first thing the nurse said was that Abby looked like her Daddy.
She's been pooping too! We were in the middle of changing her when she let one loose. It's still that black tar stuff.
Jenn and I both got some "skin" time today, so that is always a treat. She is still under the lights, but that is getting better too. She probably won't have to be under the lights for much longer.
Abigail's course of action is: gain weight, then have her heart operation, then come home. We don't really know when exactly all that will happen. It looks like it will be sometime early next year before she'll be able to finally come home.
The nurse said that once babies start the weight gain process, they put on 1-2 ounces a day on average.
Dr. King (our pediatric cardiologist) said that her PDA hasn't closed all the way yet, so he still didn't know if she will need the medicine, PGE, to keep it open.
We go to her morning changing at 8, then stay for the 12. In between, we get coffee in the Atrium at the Heartbeat Cafe. It's our new favorite hangout. Yesterday, the hospital held a New Home Buying Fair for the public in the Atrium. Then we come home, and either relax or do chores and run errands. After dinner, we go back to say goodnight at her 8pm changing.
Saturday, October 27, 2007
She has light blond hair. They gave us a little comb and brush so we brushed her hair today.
Medically, she is doing fine. They are weening her off the oxygen slowly by reducing the flow that she gets by a little bit each day. She gets echo cardiograms every other day. The doctors say things are progressing fine.
They put the picc thing in her leg. That is like a permanent IV. She gets constant food now. Jenn is "pumping it up," so that is great for Abby.
Last night was rough, (I only called twice to check on her) but seeing her this morning really helped. The hospital is super nice. The people and facilities are top notch. We couldn't be happier with the level of care. The nurses are very supportive, always explain things, and answer all our questions.
Friday, October 26, 2007
Her incubator costs about $40,000. It regulates her temperature automatically and weighs her. She likes to lay on her back. She lays back and gets a tan with her little "sunglasses."
We can go in to see her anytime. Usually we go every 3 hours. 8, 11, 2, 5, 8, etc.
The NICU closes between 7-8am and 7-8pm for the shift change. Only 3 visitors allowed at one time and you can't be showing any symptoms of being sick!
We change her diaper and take her temp. She doesn't like the thermometer so much. She poops and pees.
I think she has my mouth and she definitely has Jenn's feet. We got her footprint certificate. It was funny to see her one little toe.
She gets Jenn's milk from a tube to through her mouth down to her tummy. So she still gets the good stuff.
She really just has to grow big and strong. Then she can have her heart operation.