We met the surgeon today, Dr. John Igabashain. He is everything you would want in a pediatric surgeon: soft spoken, deliberate, and confident. The surgery is 7:30am Monday morning, although it is possible it could be sooner, but not likely. It will take 5-6 hours. There will be a team of 10-12 people. We will have a nurse come out to us to give us hourly updates.
It seems that she is ready for the surgery. You can tell she really needs it. She is retaining more fluids. Her lungs have lots of secretions and she is more agitated.
I feel terrified. I mean, my baby girl is having open heart surgery. What more can you say? It's amazing to think that if she would have been born even just 25-30 years ago, she probably wouldn't have made it this far. And I know that if she doesn't have the surgery, she won't make it too much further either. But we can't get worked up about things we can't control. We will remain positive. She has done so well up to this point, there is no reason to think that things won't turn out just fine. This time next year, we will be taking her to the mall to get her picture taken with Santa.